An individual in Indiana who has been diagnosed with a rare form of cancer is in a tough spot. Since their condition is rare, the medical community does not necessarily have access to enough clinical trial and research opportunities. Professionals in the medical field continue to research and push forward in hopes of finding elusive cures.
For the patient with the rare cancer, all they can truly do is wait. They can also participate in those clinical trials. Some patients have experienced an initial misdiagnosis, the inability to find a doctor who specializes in the condition or a feeling of isolation. Waiting for a light at the end of the tunnel can be frustrating.
The medical community is made up of curious and determined individuals. So, some are studying genetic mutations. Previously, the field was studying rare cancers and how they originate in the body of the patient. One result has been more immunotherapy drugs. Those who specialize in rare cancers have set up registries. Patients can self-report data that helps the registries become more meaningful. Doctors are also beginning to partner with small biotechnology companies. By going small, each company has a niche. That niche can be used to take steps toward a cure.
Patients who have been diagnosed with a rare cancer are not alone, but they are in a small group. While doctors are doing their best to help their patients, medical malpractice can still occur. Individuals who believe that they have been misdiagnosed or were given medication that caused adverse affects may have a medical malpractice claim. To truly dig in, the patient is encouraged to speak with a lawyer that specializes in this area of the law for further advice.